Epilepsy affects people of all ages and children are no exception. Pediatric epilepsy specialists provide support by tailoring treatment plans to meet a child’s specific needs with the goal of managing seizures while maintaining a normal lifestyle. However, as children mature, a pivotal moment arrives: transitioning from pediatric to adult epilepsy care.
The ideal time for transitioning varies depending on the patient’s individual needs. Generally, this transition occurs between the ages of 18 and 22, with the child’s developmental maturity being the primary factor determining the timeline. Children approaching these ages who can confidently communicate their medical needs are typically ready and prepared for adult care. Those children who rely heavily on parental involvement for communication and advocacy may require a later transition.
The ideal transition involves a coordinated handover between pediatric and adult epilepsy specialists in a co-located clinic where both specialists are present. The pediatric provider shares the patient’s medical history, treatment nuances and past experiences. This collaborative approach minimizes the need to repeat medical history and facilitates a transfer of knowledge to the adult provider in order to maintain advocacy and support in the patient’s evolving journey with epilepsy.
Parents play a major role in preparing their child for the transition. By gradually involving their child in medical discussions and encouraging self-advocacy skills, parents can empower their child to manage their epilepsy effectively in their adulthood. Adult epilepsy care often involves less parental involvement in appointments in medical decision making.
The core principles of seizure management remain constant when transitioning to adult epilepsy care. Clear communication about seizure symptoms and the development of a safety plan are crucial. Emergency medications should be readily available at school, work and frequently visited places. This is why preparation and open communication are key. With proper planning and support, children with epilepsy can confidently transition from pediatric to adult care, allowing them to manage their condition as adults.
At Endeavor Health, we recognize the importance of a smooth transition for patients with epilepsy. Our transition clinic facilitates the shift from pediatric to adult care, ensuring continuity and effective communication between providers. To learn more, visit us online or call 847-570-2577.